Généralités
Lupin Neurosciences s’engage à collaborer avec les professionnels de santé pour développer des solutions fondées sur la science qui vont au-delà de l’accès à des alternatives de traitement qui changent la vie afin d’optimiser les soins aux patients dans le cadre des maladies neurologiques mal prises en charge.
2024 Congresses
IDMC -14: The 14th International Myotonic Dystrophy Consortium Meeting, 09-13 April 2024, Nijmegen, The Netherlands
- Age, family history and genetic testing data from myotonic dystrophy patients and carers participating in ENSA survey
- ENSA:RevEal the burdeN on daily life for myotonic dyStrophy patients due to myotoniA: key findings of the ENSA survey
- Patient reported satisfaction in myotonic dystrophy management: ENSA international survey suggests benefits of Italian routine practice
8th International Myology Congress, 22-25 April, 2024, Paris, France
- RevEal the burdeN on daily life for myotonic dyStrophy patients due to myotoniA: preliminary results of the ENSA survey
- Expert insights: A Delphi-driven neurologists’ panel: real-world mexiletine use in patients with myotonic disorders in Italy
- Development of an auto-questionnaire to measure the impact of non-dystrophic myotonia on patients’ daily lives